Alobar holoprosancephaly?

I enjoy not see a friend of mine in a couple years and she have a newborn almost a year ago, The little one be born near holoprosancephaly contained by the most severe form. The babe-in-arms wasn't supossed to live deeply long but he in recent times celebrated his first birthday. I hold never see the toddler nonetheless and I am for a moment uptight, what should I expect? I know that their are facial deformity but I want to be prepared. This kid is a medical miracle but I want to be prepared so I don't act in response negatively. What should I expect to see?

Answers:
You may find some photographs on this site-
http://www.topsearch10.com/search.php?ai...
Anyway, you be prepared to see the worst, sorry to utter that.
Good luck!

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